One thing I figured out recently is that I need to set some boundaries for myself about work creep, friend creep, kid creep, to keep myself sane. I know, I’m 40 and it took a long time to figure out but just keep laughing. Finally, instead of waiting till I am in real trouble, I worked out with my boss to work from home again 2 days a week.

I lost that privilege when I went back to work full time concurrent with him falling down a flight of stairs. So that I don’t continue to feel like slapping stupid people where they stand (ah, is that the prednisone talking or is it really you aimless?) I will be working every other day from my home.

That should cut down on the desk traffic allright.

• One big sock pile
• polymyositis

When the boys and I went to Western New York (though I guess many folks call it ‘upstate’, meaning anywhere not NYC) to visit my Mom & Dad, Frank made a really nice snow angel. The day was awesome because it was so sunny. The yard had flooded a bit and then froze, which made a great ice patch to flop around on - the boys fell on purpose over and over, having a blast.

It was nice to leave the snow behind too - people might complain about the rain around here in the Seattle area, but I don’t have to shovel it.

Tossed into

• what really matters
• aimless travels

Finally updated my CK graph. What a nerd - I thought it would be interesting to pull my prednisone dosing into the same chart, to see the dosing and the ck level together. Especially now since I am having to come to the realization that I will not be one of those people who don’t have a flare. So, I may as well make a pretty chart out of it!

Click here for a popup of my new chart Secondary axis, and all.

• polymyositis

My stupid CK level went up to 1327 and doc upped my prednisone again, to 15mg/day. Then after 2 weeks, it had only gone to 1213, so he upped it again, to 20mg/day. I already have rounding of the face and it just ticks me off that I have to be fat and hairy to avoid being unable to walk. Okay, I know, I should be glad I’m here to whine about it. But sometimes I have just had enough of having a good attitude.

• polymyositis

Consider yourself warned. But there is a joke after that.

• One big sock pile